The MG story in pictures

Pictures tell a thousand words … hope you enjoy this little story  …

We're here in Provincetown, Cape Cod, on a mission ... for MG.

My Classic VW Camper catches the eye of tourists and I explain .. "We promoting awareness for a little known autoimmune disease called MG, that causes muscle weakness. Do you want to take a photo and tell your friends about this?

Myasthenia Gravis, or MG, often causes droopy eyelids and Carole's MG hippo is over here from England to help explain the disease to children who want to know more ...

This poster describing MG, mentions the droopy eyes. Other symptoms are blurred vision, difficulty chewing and swallowing, slurred speech, inability to smile, weakness in arms and legs. All skeletal muscles are affected to one degree or another by this neuromuscular disease.

MG is one of the least well known AUTO-IMMUNE diseases. Others that you will most likely know of are Diabetes (type I and 2), Rheumatoid Arthritis, Lupus, ALS (Lou Gehrig's disease) .. and the list goes on and on (so far almost 100 AI diseases have been listed - see http://aarda.org/ for more information) ...

The charities that support MG research have little funding and are not known by the public. The posters here are from the MGFA (Myasthenia Gravis Foundation of America - http://myasthenia.org/)

The poster on the left is from the MG Association of Kansas City (http://www.mgakc.org). They have a very talkative patient support group on Facebook at http://www.facebook.com/mgakc if you'd like to see what MG patients say about living with this disease

Please support our cause and put MG on the map, by sharing this album with your friends and inviting them to subscribe to this blog. Later this year we’ll be driving across America to promote awareness for MG and writing about it here. We hope you’ll keep in touch and send your comments.

To add your support, you can also ask your friends to ‘like’ our VW page on Facebook, called “The YesWeCan CamperVan”, which can be found at http://www.facebook.com/pages/The-YesWeCan-CamperVan/203679777444

SOME IMPORTANT LINKS (mentioned above):
Myasthenia Gravis Foundation of America – http://myasthenia.org
MG Association of Kansas City – http://www.mgakc.org
MG Association of Kansas City  FACEBOOK GROUP – http://www.facebook.com/mgakc
The American Autoimmune Related Diseases Association – http://aarda.org

THANK YOU for CARING and SHARING the word …. and in this case, the pictures 🙂

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2 Responses

  1. This is such a lovely mission Carole! Keep up the good work!

  2. Thanks Katherine – it’s a lot of work and still hoping to find a corporate sponsor for the 6000 mile trip across country from Sept to end of 2011.

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