June is MG Awareness month

Myasthenia Gravis Awareness - A teal blue ribbon

Please tell all your friends that June is the official month for MG Awareness. Together let’s raise the visibility and compassion for people with this disease.

MG – Myasthenia Gravis – is a largely ‘invisible’ auto-immune disease because of the low level of awareness amongst medical professionals and the general public. I’m hoping to change that by using my ‘attention-getting’ vintage VW to attract attention to the cause of ‘putting MG on the map’.

If you’d like to find out how you can help, please email me at caroleiod@gmail.com or re-read the post A Cause for our New Year.

Two good sites about MG on the internet are:

MGFA – MG Foundation of America which supports research, medical education and patient care – http://www.myasthenia.org/

MGA – MG Association of Kansas City whose Facebook group is the largest support group for patients and their friends wherever they are located – website at http://www.mgakc.org and Facebook group at http://www.facebook.com/mgakc

If you know of other helpful websites, please add them in the comments box below.

Also please remember to keep telling your friends about this blog and our Facebook pages, so that we can get more supporters for this cause and partners for our coast to coast roadtrip for MG right across America later this year (https://yeswecanjourney.wordpress.com/2011/01/29/a-cause-for-our-new-year)

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One Response

  1. Since writing the above post, I have found two other useful web sites:

    The Rachel Esther Foundation – for teens with MG – http://www.rachelesthermgfoundation.org/home/

    The American Autoimmune Related Diseases Association – for information on all AI diseases – http://www.aarda.org/.

    MG is one of hundreds of auto immune diseases, and did you know that 75% of those affected by AI are women? In my years in the pharmaceutical industry, so called ‘women’s diseases’ always had much less attention than ‘men’s diseases’. That’s why it’s only recently that women have been made aware of their risk of heart attacks. I knew about that in 1978 because the data was available then!

    Let’s not wait 30 years to get out the word on MG and other auto immune diseases.

    Now we have blogs, Facebook, Twitter and many more ways to share information widely and easily, it’s up to us. A little time invested, could have dramatic effects.

    What do you say?

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